Megan’s world was turned upside down in 2024, when she was diagnosed with a rare and chronic neurological disorder called Cerebral Amyloid Angiopathy-Related Inflammation.
A brain tumor survivor reconnects with nature and healing on a family trip to Lake Superior and the Apostle Islands. The journey, supported by Outdoor Mindset, blends physical challenges with emotional renewal through simple adventures and family bonding. The trip rekindled a sense of freedom and self, redefining adventure and joy after brain trauma.
“The gift shop’s out this way, yeah?” an older, rugged-looking man asked me as we walked past one another, at the very top of Trail Ridge Road, around Marmot Point. “Yeah, right up that-a-ways a bit, if you see the doughnut shoppe, you’ve gone too far!” I responded, garnering a chuckle from my new mountain friend. Walking back to the car, I took a moment to stop and take in my surroundings.
Meet Megan! Megan was diagnosed with Cerebral Amyloid Angiopathy - Related Inflammation in February 2024. In her words:
“I don't believe there is any aspect of my life that hasn't been impacted by my diagnosis! Daily tasks, chores/errands, the ability to keep up our home, relationships, and work...they've all had to change. I can no longer work, nor can I be the contributing member of the household that I used to be. It has been a real journey of loss and acceptance, but I am learning to adjust how I contribute, as well as pace myself so that I can still be productive in some sense and also enjoy life."
I grew up in a pretty outdoorsy family and have been blessed with some fun experiences when I was younger. However, they have been extremely hard on me and for the longest time, I thought I was just a wimp or out of shape.
Megan’s world was turned upside down in 2024, when she was diagnosed with a rare and chronic neurological disorder called Cerebral Amyloid Angiopathy-Related Inflammation.