OM STORIES

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Kudos to OM's New Website!

We are psyched about the new platform for our members to connect and get outside. We have continued to grow our membership to over 260 members located in over 30 states. To refresh, here are the programs available to our members through our NEW and IMPROVED website:

We are psyched about the new platform for our members to connect and get outside. We have continued to grow our membership to over 260 members located in over 30 states. To refresh, here are the programs available to our members through our NEW and IMPROVED website:

  • Free Membership Community: Community membership is available for anyone who shares our passion for the outdoors and has been affected by a neurological challenge (including diagnosed individuals and their supporters). Members may connect with other members, participate in our programs, gain access to special events, participate in exclusive giveaways, access member discounts & perks, and more.

  • Connect Program: Members may search other members' profiles and connect one-on-one with another member who has experience with a similar diagnosis. These relationships inspire hope, instill passion for maintaining outdoor lives and enable our members to receive support from someone uniquely familiar with their experience.

  • Meetup Groups: These groups strengthen connections and empower members to get outside with other members in their local area. Members may join awesome events or organize their own adventures. We are now located in 5 cities, including Boulder, Denver, Breckenridge, Hanover, and Cincinnati!

You MUST be a member to take advantage of the following tools/features. 

Join Now!

  • Member Perks: Members can enjoy exclusive member discounts to help motivate and empower them to live big!

  • Search other Members:Members may search other members by diagnosis, outdoor passion, city, age, or gender...and connect online to get offline and into the outdoors!

  • Say Hito your Connections: Once you are connected to other members, you may send him/her a private message.

Please visit our new 

website

 and email us with your feedback or testimonial: 

connect@outdoormindset.org

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Meet Your Denver OM Ambassador, Amanda

We are so excited to have OM members and sisters - Lisa and Amanda Avram - as our new Denver OM Ambassadors. Their Live Big spirit is contagious, and they have some great ideas for fun and unique Meetup events in Denver! Article below was submitted by Amanda Avram.

We are so excited to have OM members and sisters - Lisa and Amanda Avram - as our new Denver OM Ambassadors. Their Live Big spirit is contagious, and they have some great ideas for fun and unique Meetup events in Denver! Article below was submitted by Amanda Avram.

What’s up, party people!  My name is Amanda.  I’m Lisa’s sister.  I like to think of us as the Dynamic Duo of Neurological Awesomeness. I am also born and raised in Ohio, but I’ve been out here in Denver for 8 years… I think.  Maybe it’s 7 years? I don’t know, somewhere between 7-9 years. I am a Senior Educator at the Denver Museum of Nature and Science. I teach everything from Dinosaurs to brain dissections and to every age from Pre-K to Pre-service teachers. It’s ridiculously fun. I feel like I get paid to play, which is nice!

I consider Colorado to be the most epic playground one could ever imagine.  Rock climbing, hiking, camping, backpacking, snowshoeing, mountaineering, cycling, blah, blah, blah all right outside your door. Not only that, but you get to do it with this stupid awesome backdrop of mountainous goodness all around you. It’s surreal at times (especially when you grew up in Ohio), and it is very zen-like and restorative. Clearly, I love doing all those things. Like my sister, I love climbing the Colorado 14ers and pretty much anything high altitude. I have climbed Mt. Kilimanjaro and, recently, went to Argentina to attempt Mt. Aconcagua. I had to turn around at 21,000 ft because of cold. It was a difficult decision to make, but I don’t regret it. I sort of need my fingers and toes. Priorities, I guess! I’d love to go back and give it another go.

Apparently, Epilepsy runs in our family. I grew up with it, our Mom grew up with it, and now Lisa has it!  Hey, sharing is caring. I learned that in pre-school. My seizures started when I was in 1

st

or 2

nd

grade, and I had them through High School. My favorite seizure story starts with, “This one time at band camp…”

My latest neurological adventure is my TBI diagnoses. It happened 5 years ago. I was traveling back from Nevada with a group of friends when our vehicle was struck by a double trailer semi-truck. I can now legitimately say I know what it feels like to get hit by a truck. So, I have that going for me.

What are my hopes for Meet-ups:

I just want to get as many people out doing as many super fun things as possible. I really want to get the Outdoor Mindset Organization out there in the public eye as much as possible. So many people can benefit from this organization, and I want them to hear about it!

Not surprising facts about me:

If you haven’t figured it out, I like to keep things light. Laughter really is the best medicine for me. I’m pretty fun-loving and easy going. I just like having a good time.

If I were a cheese, what kind of cheese would I be?

If I were a cheese, I’d probably be like a Taleggio or something like that. It’s slightly stinky; but, if you can get past the smell, it’s really delicious!

If I were a Teenage Mutant Ninja Turtle, which one would I be:

Michaelangelo, DUH!  He’s goofy and slightly stupid at times, but can wield a nasty set of nunchucks when necessary! Also, he loves pizza as much as I do.

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Meet Your Denver OM Ambassador, Lisa

We are so excited to have OM members and sisters - Lisa and Amanda Avram - as our new Denver OM Ambassadors. Their Live Big spirit is contagious, and they have some great ideas for fun and unique Meetup events in Denver! Thanks, ladies! Article below was submitted by Lisa Avram.

We are so excited to have OM members and sisters - Lisa and Amanda Avram - as our new Denver OM Ambassadors. Their Live Big spirit is contagious, and they have some great ideas for fun and unique Meetup events in Denver! Thanks, ladies! Article below was submitted by Lisa Avram.

Hey Outdoor Mindset! I’m an Ohio native (Go Buckeyes!) who moved to Denver in 2001 and hasn’t looked back. I do miss my family in Ohio; but, I'm lucky to have a brother and sister and their families out here with me.  And, I’ve got some pretty amazing friends all over. I am a special education teacher working at Children’s Hospital Colorado. I teach in program called Project SEARCH- it’s a job development and employability training program for young adults with disabilities….And it’s awesome! I’ve been a special education teacher for 12 years now. Whoa. What? Where does the time go?  

Denver has so many things to do out here - camping, hiking, running, climbing, biking, snowboarding, snowshoeing….you get the idea! and it's all in my backyard. Camping and then climbing a 14er is one of my favorite things to do. (I’ve climbed 9 total, and Bierstadt twice and just want to keep checking them off the list!) I most recently completed the Ragnar Colorado Relay which is a 200 mile running relay that started in Copper, went to Breckenridge, over to Vail, then Glenwood Springs and FINALLY ended in Snowmass. I ran 3 legs of this relay- there was a team of 12- and although all of it was beautiful, my favorite part was running through Glenwood Canyon at 3:00 in the morning, with the sound of the rushing water and the stars above me. It. Was. Perfect. I’ve also ran 2 half marathons, countless 5k’s and 10k’s and one day would love to climb Mt. Kilimanjaro and visit Germany.

I have epilepsy- but it hasn’t stopped me from doing things I love. I’ve had seizures as long as I can recall (I remember my first one at the age of 4), but wasn’t “officially” diagnosed and put on medication until 2000. I was in college. That’s a long time to live without knowing what kind of day you were going to have. It took a while to get used to having to take medications and trying a bunch of them to figure out what worked, (and even still things change and it’s like starting all over again) but now I’m an advocate and a supporter for myself and others with epilepsy. I don’t think it’s talked about enough and I’m all about bringing more awareness to the epilepsy community. 

Interesting facts? I've broken/seriously injured my left wrist 3 times in 3 years. The last time, I completely shattered it and I now have a metal plate and 12 pins in it! There was a stint of three years in a row, where I always had some sort of cast or brace on my wrist. It made for some great conversation starters at work, for sure.   

Favorite colors? Brown and green. 

Favorite season? Fall! (It’s here! It’s here!) 

Superpowers?! I've always wished to be invisible-even more than being able to fly.  And I definitely

wouldn't

want to be able to read people's minds! 

I hope that being a member of Outdoor Mindset allows me to meet and support others using my passion for awareness and my passion for the outdoors. I’m a huge believer in the healing powers of “just being” outside and making connections with others. I’m interested in organizing some more Denver meet-ups for OM, and meeting some great new friends! Let’s go Live Big! 

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Can Do Day Story - A guest blog from our partner, Can Do MS

In honor of CAN DO DAY, our partner Can Do MS, wanted to share a story on our blog. Can Do Day is all about living big and focusing on what you can do. Get inspired and make a pledge about what YOU can do this September 22nd!

In honor of CAN DO DAY, our partner Can Do MS, wanted to share a story on our blog. Can Do Day is all about living big and focusing on what you can do. Get inspired and make a pledge about what YOU can do this September 22nd!

"We were relieved to finally have a diagnosis..."

Amy Sleeper

Most of us spend our childhoods believing that our parents are superheroes – that they’re indestructible, can do anything they want, and can save our lives simply by putting a Band-Aid on a scrape. This belief often disappears quickly as we grow up. Unfortunately for some of us, it disappears for a much different reason. Amy Sleeper’s dad David was diagnosed with multiple sclerosis when she was a junior in high school, even though he had been suffering from its debilitating symptoms for years before that. Within a year, he went from being one of the top finishers in his age group during a local mountain-bike race, to struggling to finish it. He endured years of doctors’ visits, being told that nothing was wrong with him, that he was just getting older. Finally, the doctors diagnosed him with MS. 

“We were relieved to finally have a diagnosis, and although it wasn’t something that I went around telling everyone, it wasn’t something that I ever lied about or hid from anyone who was curious. When I went off to college, I even came home for Thanksgiving with a brand new tattoo – the MS awareness ribbon!” Amy said.

In 2012 David learned about the flagship four-day CAN DO® Program in Denver, CO, and invited Amy to join him as his support partner. Already an active volunteer at the Can Do MS office, Amy participated in this life-changing program and began spreading her

can do

spirit as a daughter, support partner, and humble advocate for Can Do MS. 

“Since the program, I’ve met a handful of young adults just like me whose parents are living with MS. I take the time to explain how amazing my experience was at the program and let them know about all the resources Can Do MS offers. It’s my way of spreading the

can do

philosophy.”

Can Do Day is all about sharing that philosophy! It was created to honor Can Do MS founder Jimmie Heuga (1943-2010) on his birthday and to raise awareness for MS. During September supporters are encouraged to share their pledge on our Facebook page of what they

can do

on Jimmie’s birthday. On September 22

nd

, they post a picture of what they are doing to help spread the

can do

spirit.

Amy’s pledge is inspired by her father as well as her experience at the program.

“I left the program with a new appreciation for life and the realization that even though I may feel indestructible at 25, I could lose that feeling for a number of reasons. I have always tried to live my life to the fullest, but this program and all of the amazing people I met have taught me to take nothing for granted. I see my dad in a new way – I admire him every day for the strength he puts forward to accomplish all of his goals, and I only hope that I can grow up to be as strong as he is.”

Amy’s pledge starts by participating in a five-mile mud run on September 21

st

. On Can Do Day, Amy is going to spend the day raising awareness for MS and our programs by sharing her new appreciation for life through email and social media. Most importantly, Amy is going to spend quality time with her Dad over the phone to let him know how much she loves him and that his strength is her source of inspiration.

Join Amy on Can Do Day, September 22

nd

, to make your own Can Do Day pledge! Help honor Jimmie Heuga on his birthday by sharing your

can do

spirit with your friends and family by raising awareness for MS. Visit the

Can Do MS Facebook

page today to share your pledge!

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Member Highlight - Michele




I'm a SF Bay Area native, living with epilepsy all my life. I love being outdoors. Nature helps me connect with God & feel alive. I've been married for 19 years to my love, Michael. Together we've successfully raised our blended family of 3 kids (Hilary and Dan - my two from my first marriage, Sean - Michael's son from his first marriage).  

I live in Santa Clara, California, the heart of innovation, Silicon Valley. My outdoor passions are hiking, walking, yoga, spending time in nature. When I was younger, I ran through the woods once or twice a week. Michael and I rode our bikes through Italy and we did century rides for years. I spent many years as a runner, a triathlete and I love open water swimming. Unfortunately, it's not safe for me to swim alone because I nearly drowned several years ago after having a seizure in a swimming pool.

My most significant current challenge is recovering from VNS surgery. I've had VNS for 10 years, which stopped my daytime seizures 100%. I still have occasional nocturnal seizures, and lately I've had a few partial complex seizures when the VNS stopped working. The entire unit was replaced on August 8th.  

If I woke up tomorrow as an animal, I'd choose to be a dog, a black lab like my Lucy. Lucy loves to walk, play & sleep -- she loves unconditionally.

My motto is, Live each day as if it was your last - Epilepsy does not stop me from living a full live.

I joined Outdoor Mindset in the Summer of 2012, after completing my masters studies. I love the idea of connecting with others who live with neurological disorders and sharing our mutual love of being outdoors .

My expectations for Outdoor Mindset are to do a group hike in Yosemite, maybe climb Half Dome. I'm in the very early stages of training for a half marathon in LA in March 2014 through Athletes v. Epilepsy, a division of Epilepsy Foundation of America.

I'm most looking forward to meeting new like-minded friends through OM's Connect Program, and training for some local outdoor adventures next Summer. I would love to be part of a local Meet Up group.

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Misty's Journey to Empowerment

Read about new OM member, Misty, and her experience on the recent Denver/Boulder Meetup: Hiking Mt. Sherman with Colorado Climbers for Epilepsy. Misty recently joined OM and lives in Castle Rock, CO.


I must say that I went out of my comfort zone on this past weekend. I saw the hike online and said to myself "I want to do this for my son." I sought out friends and family to hike this 14er with me.   

My son is 8 years old and has epilepsy. He was diagnosed almost 2 years ago. I struggle mentally trying to figure out answers for my emotions over this. I support him in anyway I can trying to empower him while doing little to empower myself. In one year Austin has (so far) run four 5k's and a kids triathlon. 

When I couldn't find anyone to go on this hike with me, I sought elsewhere, calling Tom Olsen and emailing you [Outdoor Mindset]. Both were very welcoming and I realized seeking elsewhere meant allowing myself to go out of my comfort zone. I struggled up and down but I realized giving myself permission to do this empowered me in ways I cannot explain.    

I had an amazing and emotional trip. Everyone I met made me feel very welcome. I spent the night in Breckenridge, CO that night having some time to think and reflect on my emotional day and our journey with epilepsy. I woke the next morning so happy to say, "when can I hike my next 14er?" I thank God for allowing myself to be empowered by such stressors and beauty of hiking a 14er. I also thank him for the wonderful people who helped encourage me mentally along the way.  
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