OM STORIES
Can Do? YES YES YES!
We are so excited to announce a new partnership with Can Do Multiple Sclerosis, an organization we have greatly admired from our creation and along every step of the way. Can Do MS
is a leading provider of innovative lifestyle empowerment programs for people with MS and their support partners. Leveraging the powerful legacy and principles of former Olympian and organizational founder Jimmie Heuga, Can Do MS has helped thousands of people living with MS reclaim a sense of dignity, control and freedom by empowering them with the knowledge, skills, tools and confidence to transform challenges into possibilities.
What inspires us most about Can Do MS, and probably what connects us most deeply, as well, is their positive outlook on living with a neurological challenge. They say that by focusing on what you can do, their programs can provide a whole new way of thinking about and living with MS. And now, as a partner of Outdoor Mindset, we can focus on ways to do this together to serve all of our members!
We've made some great strides on being able to serve our community of MS Members, and our partnership with Can Do MS is going to provide us even more opportunities and insights on where we should go next.
Here's a great story from one of our Outdoor Mindset Members and Guides living with MS, with a serious 'can do' attitude, who recently enjoyed a great hike with through OM Meet-Up Groups:
Sandy joined Outdoor Mindset looking for some hiking partners. Sandy is a massive and serious hiker and after being diagnosed with Multiple Sclerosis, continued her hiking passion using forearm crutches (along with doing some other awesome adaptive sports like monoskiing and handcycling!) She says she's still a pretty serious hiker, although she's had to adjust her expectations a bit with a slower pace. She's had trouble finding hiking partners because her pace is a little slower than the average hiker, however she can seriously hike all day - like 11 miles!
Sandy attended a recent Outdoor Mindset Meet-up Group doing the Twin Lakes Hike near Boulder, and here's what she had to say after:
"It was so wonderful for me to have such great company for a hike in one of my favorite places in the world. And I think we were so well matched as far as hiking ability! And how wonderful to have hiking companions that were not freaked out by my crutches and I wasn't the weird, disabled one trying to keep up with the able-bodied folks. Instead, I just was one of the group and it was so very lovely. Thank you so much for setting this up!"
And Sandy wasn't the only one feeling inspired that day. Another hiker from the Meet-Up group wrote in:
"It was good to spend time with others who have similar conditions. And what an inspiration Sandy is - wow."
I'd say that was a pretty exceptional day for all! We are SO thrilled to be able to help nurture this experience between our Members and can't wait to spread the love with Can Do MS, as well!
Don't forget to check out our Meet-Up Groups in:
Boulder, CO
Hanover, NH
Cincinnati, OH
...and more to come!
Jill
Sometimes you just need a giggle!
Life can be stressful… I don’t think anyone would deny that statement. With a dog post-ACL surgery waiting for me at home in a cone (which she hates!), the expenses and stresses of moving to a new town, and what seemed to be a slew of lame things happening to my friends weighing on my mind, I was walking home from work one evening when I passed the Bozeman Center for the Arts and noticed a strategic piece of graffiti that brought a smile to my face. Someone had spray painted a ‘F’ in front of the word ‘Arts’ on the sign outside the building so that the sign read “Bozeman Center of the Farts”. Immature – yes. Vandalism – also true. Funny – without a doubt! I found myself laughing the rest of the way home, and
MAN IT FELT GOOD
. For me, sometimes I just need a good laugh to help turn my mind and my day around, and I know the others on the Board of Directorsfor Outdoor Mindset feel the same way. That is actually one of our main values
we wanted preserve when creating Outdoor Mindset, to incorporate humor in all that what we do. We want to make people laugh and smile, despite any other neurological craziness going on in their lives. Sometimes we can be quirky… would anyone agree with that? I mean have you seen the video we submitted for the
Cultivate Wines Non-Profit video contest, The Give
(Oh yeah, and also, please vote for us here every day from now until June 30th so we can win some moolah to spend on our Members!) I don’t think you could NOT crack a smile when a suited up Kyle Martin comes rolling down the road towards the camera and then almost runs right into the thing (right at the 1:15 mark for anyone who may have missed it. Your welcome, Kyle.)
So please, try to have a giggle. Sometimes you can’t just go out and find it when you need it, so let it find you, too. No matter what’s going on in your day, in your week, or even in your BRAIN, try to find a smile or some laughter somewhere out there because I promise it’s going to make you feel better.
“The most wasted of all days is one without laughter.”
- E.E. Cummings (<< See, it's not just me that thinks so... this famous guy backs me up)
Laughing all the way,
Jill
Still in the Game
Greetings Outdoor Mindset friends - I hope you all had a fabulous weekend!
Everyone always needs a bit of inspiration on Mondays, and I have just the story for you. Today we have a guest blog from Outdoor Mindset Member
Don, who is an avid lover of the outdoors and the sport of hunting. Don also has debilitating Multiple Sclerosis. Don's attitude, similar to that of Outdoor Mindset's, is that nothing is going to stop him from doing what he loves, and he's broken down many barriers and hurdles to make that happen. I love the title Don has given his blog - Still in the Game - because that's exactly what he is... still in the game, and a major player at that! Don't ever forget that you are ALL (neuro challenge or not!)
always
still in the game, and take strides to make sure you are a major player, just like Don.
Still in the Game
It's been several years since I've put together my story so when I was asked by my new friends at Outdoor Mindset to write something up for their blog, it took more serious thought than I expected. I do my best pondering in the woods so I'll head out to a little strip of high ground between our food plot and a pond. That's where I'll begin my tale.
As I absorbed the peace that is so often my companion when I'm in the outdoors, my thoughts turned to the road I've traveled to get to this point in my life. A person never knows which way the path will lead. We encounter many forks along the way, some of which lead to good stuff, some bad. Either way we live, learn, and move forward. Sometimes the path is smooth but often it's just plain rough and feels uphill all the way.
Finding out you have a serious illness makes a pretty nasty bump in the road. Living with the progression of that illness is rough. When we are faced with something like that, a person has two choices. We can either give up and crawl under a rock or we can play the hand we are dealt. I choose to play.
My struggle with a physical disability started in 1996 when I was diagnosed with multiple sclerosis. My world was shaken. Suddenly my future was uncertain. I was 31 years old with a growing family and a solid career path teaching and counseling that I truly enjoyed. Thinking back, there really was no choice. It simply needed to be faced and that was that. My wife Leann and I waged a silent battle against the disease for some reason not wanting to burden any family or friends unless we absolutely needed to. That time came all too soon and by 2004, I could no longer function well enough in my job and needed to go on disability. My mind was fine but I was down to one usable leg and one arm. Combine that with dizziness and fatigue and I wasn't doing my students much good anymore.
Going on disability felt like giving in but there were no other options. Thankfully I had some time to prepare things so I could still be in the woods and not trapped in the house! Still… I needed some serious soul-searching to find a new direction. I began to help Steve, a buddy of mine who worked for Babe Winkelman Productions. Babe helped me get started with voice-recognition software and I communicated with folks calling in looking for information about hunting and fishing opportunities around the world. I
would put them in touch with outfitters who could offer the services they were looking for. Interesting work and I met lots of great people but I knew it wasn't the direction I was meant for.
I was visiting with Steve and he made an interesting suggestion. He said that since I was already researching ways to stay in the woods or on the water maybe I should use my computer knowledge and find a way to share that information with others. I asked him to tell me more and he suggested I build a website to share some of my information. He said "you can't do things the way you used to but what you do is a far cry from sitting on the couch watching hunting shows and wishing"
At that time, information about the outdoors for someone with a disability was all but impossible to find. My wife and I sat down together and figured out how to put the information I had gathered for myself in a format that others could use. It wasn't long before we had a small working website named
with some basic tips and tricks I had found to be useful. One thing led to another and the site grew almost faster than I could keep up. I'd research things and talk with outfitters during the day and my wife would get home from work and we would add them to the site. Soon it was all I could do to keep up with the calls and e-mails but I was loving it. I had a direction and was doing some good!
Meanwhile, MS was taking its toll on my body. I kept losing ground and wasn't far from being bedridden when the drug Tysabri became available. It was risky because the main side effect was death but the alternative was spending the rest of my life in bed. I couldn't do that as long as there was any option at all. I took the chance and never looked back. So far so good and it's been about six years as I write this story.
As always, there are good days and bad days. I always used to tell people that I would hunt as long as I can pull the trigger. When that day came and my hand could no longer squeeze hard enough, it hit me hard. I came back to the house feeling about as sorry for myself as was possible. Imagine how pleased I was when I got my first sip and puff trigger and could do it with my mouth! It's been five seasons now in which I harvested my deer without lifting my hands from my armrests.
That gives you an idea where I'm at. I am a quadriplegic so things are different than they were when I was able bodied but I've become so much more than I ever was before. I can’t walk but I can and do have a positive impact on so many people. I firmly believe the quote "that which does not kill us only serves to make us stronger". What happened to me could happen to anybody. Whether it be an accident, illness, or other catastrophe, the issue is not what happens to us but what we do with it. If you are new to the game, come on in, and we'll make the most of life together!
Don
Chapter 2
I blinked and somehow more than ten years have passed since I wrote that blog for Outdoor Mindset.
My original intention was to add a few paragraphs to bring the story up to date. However, there have been so many changes and so much water under the bridge that I cannot bring myself to modify the honest feelings I wrote in that story. I will have to simply sit down and write chapter 2 to bring my readers up to date. While I truly appreciate your attention and your patience when I become long-winded, I will do my best to keep this as brief as I am able. I can certainly understand the difficulties faced by directors when they try to portray a good book during an acceptable runtime for a movie.
Overlooking the Chagress River in Panama
Tysabri kept my MS under control for another year and a half after the end of chapter 1. My worst fears were realized when the side effect of death suddenly became imminent. With only a year to live, I was forced to expand my search for a cure beyond our borders. My family, my friends, and the whole hunting community came together to send us on a trip to Panama for a life-changing stem cell transplant. That brought into my life an unforgettable year of miraculous improvements to my abilities. Among the changes were things like motion returning to my right arm that had not moved in seventeen years, improvements in vision, thinking, and the list goes on and on but that’s another story. Suffice it to say that the changes were awesome in a disease that allows for no improvement.
Shooting from my standing frame
As the positive changes happened, there were several changes in my family dynamics and I found myself divorced and living on my own dependent upon a team of caregivers working hard to keep me in my home. Just a few years after the successful procedure, I once again got very sick. My kids traveled home to stay by my side during the terrible life-and-death struggle with Guillain-Barre. For weeks, I lay in a hospital bed without vision and struggling to communicate through lips that were paralyzed. Thankfully that storm finally passed and I began to focus once again on my struggles with MS. We traveled once again to Panama for another stem cell transplant with the hope it would counter the effects of the Guillain-Barré. My second treatment brought a new set of exciting changes to my life. My body’s ability to control its own temperature returned to normal and my strength and mental clarity improved dramatically.
Fishing boats in Panama are not very accessible
Throughout the roller coaster ride that has become my life, I learned to do my best to keep up the good fight and to enjoy the blessings that come along as part of every day. My little girl is all grown up now but she travels home from Washington to spend every deer season with her dad. That gives me some of the finest moments life has to offer throughout the year. I still shoot with my faithful mouth control for both crossbow and gun. I have found it is more than just possible for a quadriplegic to consistently harvest nice whitetails, turkeys, pheasants, and even to catch some pretty great fish. I manage my own team of caregivers and lead a happy and fulfilling life still trying to leave world a little better then I found it.
My daughter and I in the deer stand
I am most defiantly still in the game. If you are as well, give me a shout. I love to hear and maybe share your story. If disability is affecting your ability to enjoy the outdoors, give me a shout. I’d love to help.
My first Tom from a wheelchair
Is that just the dose of inspiration you needed on a Monday? Now get out there, get involved, and get cranking on something awesome.
Jill
Hold on to your seats!
SPRING MADNESS!!
What season do you think is most productive for new ideas, adventures, and stepping out of the box? Is it Fall/Winter when leaves start to turn red/brown and then it gets to be -30* outside? Or is it Spring when flowers start to bloom, the grass turns from brown to green, and the sun is constantly shining outside? I’ll let you take a guess which season I’m leaning towards for my final answer. At Outdoor Mindset, we have a history of Living Big in the Spring. Way back when, when Outdoor Mindset first got started, a great majority of the Board took a trip to New Zealand in April of 2010. For two weeks we explored the South island, and backpacked, beach-camped and bungee jumped through that amazing country. You can check out our full adventure here. And while that seems like so long ago, and just like yesterday all at the same time, the Spring tradition continued last year, when we launched our first ‘March Madness’ fundraising campaign to help raise funds for our Guide/Traveler Program. This included activities including 5ks, huge Adventure Races, and even mustache growing to help spread to OM spirit.
So now here we are, Spring 2012, and how are we going to top ourselves this Sping? Well, there is LOTS going on at Outdoor Mindset, and that’s an understatement. We have two Board Members traveling the world for a year (and skyping in for Board Meetings from beautiful places like Thailand! Checkout their blog here) two Board Members about to take a 4 month adventure to Costa Rica, two moving out to Bozeman, MT (and taking OM with them!), two with new babies this year, Med school domination on the East Coast, and much much more. PLUS, we just hired our first part-time staff member (Welcome Patti!) to help expand and develop our membership programs, which is huge for us! AND, like that’s not enough, we just launched our new fundraising campaign, appropriately titled ‘Spring Madness’ to get people outside, trying new things, and join in on the fun that Outdoor Mindset likes to explore during the Spring Season, while raising funds for our Meet-Up Groups.
Check out our Crowdrise Page to see all the amazing things we’re doing for this Spring Madness campaign, and get involved in a project, or just flat out donate! Like I said, our focus for this campaign is to raise funds for our biggest 2012 initiative - Outdoor Meetup Groups within our membership program- to strengthen connections and inspire members to get outside. What a better way to build a connected Outdoor Mindset membership than to get outside together? Since many expenses go along with managing this program; such as the technology platform to manage events, labor costs associated with managing the program, outreach materials, food & beverage costs, rental expenses, etc., we’ve set at $10k goal for Spring Madness and need your help to reach that numbers. So come get involved, join in on the fun and start your own pattern of Living Big in the Spring… we wouldn’t have it any other way!
And just in case I wasn’t clear –
to join in on our Crowdrise Spring Madness event, donate, or for no other reason, just to see how cool we are. :)
Hope you're all having a great week - and Happy Spring!
Jill
Possibilities
Here he goes:Tonight was a full moon night. Cold, semi clear, and brightly illuminated. As a celestial event, I am often amazed by how many people fail to recognize this regular events passing. After all, it has an effect upon all of us that is often unrecognized, and in profound ways. Growing cycles in agriculture which dictate for many growers when to plant and when to harvest. Tidal movements in the ocean which dictate when to leave a safe harbor, or when to enter one. A full moon always seems to be the highlight of the lunar cycle. Taking a moment to enjoy the sight is always worth it.
Tonight's full moon was especially opportunistic. It seems like I used to take more advantage of the light nights to get outside more. To go for a snowshoe, have a bonfire on the beach, and just enjoy the event on a regular basis. When my friends decided to cancel and stay inside tonight instead of go for a snowshoe, I almost plopped in front of the tv for dinner and a movie. Why I didn't though is at the essence of all this full moon talk.
I got some great news today. It was news I hoped for. But it was news that confirmed my fears could be laid aside for a while longer. My doctor called today and said that my brain tumor looks to be shrinking. It is supposed to be dead, but retains its presence for some odd reason. That it is shrinking, is indeed great news. Suddenly, the world was again full of new possibilities. Suddenly the air smelled sweeter. Howling at the moon was suddenly an excellent idea.
Possibilities. That is what this is about. Socrates in all his ancient wisdom decided that if one were to search for truth, all you had to do was to think critically, remove all the "wrong" ideas, and ultimately you would be left with the "truth". The problem with that though, is that to think critically all the time, you end up losing sight of the experience. You get stuck in a negative rut analyzing what is wrong, and not seeing what is right. You never get outside and enjoy the full moon because it is cold, you have a brain tumor, you are tired, your afraid of everything not "right".
When you find out you have serious health issue life become simple. It becomes about survival. Life and death stuff, what movies are made about. All the silly petty crap like what "lifestyle" you have, the car you drive, it all gets gently slammed into place in the time it takes for a doctor to tell you what's wrong. But what is amazing, is what things emerge from the chaos and rise to the top of the pile as important. As essential actually. It seems like the short list is really a list of what makes life important to us individually. Usually friends and family top the list, not house and job. "You never know what you've got till you loose it," is a classic saying, but it is truly a hard lesson to learn.Some of the greatest people I know have lost nearly everything. But you wouldn't know it. They live life at a pace that is staggering to watch. They have been knocked down, and get back up rejuvenated to enjoy, appreciate, and share what they have, with a smile on their face. It seems like neurological disorders give you a choice. You can give up, or you can get up.
Outdoor Mindset is comprised of a group of people who appreciate what they've got. Some almost lost it before they realized it. Some have learned to appreciate what they have by watching others. Either way, the emphasis in OM is about the possibilities. There are a million ways to appreciate whatever good health we have. It might be cycling across a continent solo. Or it might be going for a full moon walk with friends. Either way, the level of appreciation is the same. It is about taking each and every second, and making it count. Why go out and enjoy the full moon? Because you can.
Jesse Horton
President and Chief Mischief Officer, Walt Horton Studios
Hope everyone is having a fabulous day!
Jill