I’ve loved hearing about Robin’s (Julie's mother) attitude towards combating ALS. Dealing with a neurological challenge as the diagnosed, or as a supporter, is never a welcomed challenge, but it can bring small gifts such as hope and a desire to push ourselves just a little bit harder.
I'm out there running on the rim of the Baltic Sea. It's
possibly the most motivating place to run. It's pretty dark and cold here in
the winter so when summer comes and it's finally warm it's so freeing to be
outside. It's the perfect time and place to start this running adventure of
My mom was using a walker for a long time and eventually
graduated to a motorized wheel chair. Every day she would try and walk with the
hope of not needing either eventually. We had this island in the middle of the
kitchen and she would do “laps” around it: trying not to hold on. One day one
of her friends, (we called her friends “sisters” or “circle of friends”) came
over with a little bubble machine that was this funny contraption of a guy that
pulled his pants down and shot bubbles out of his butt. Immature but it made us
all laugh. So, she would round the
table and get back to the end where bubble butt was and laugh again at the
success of her rounding the table, at bubble butt. This is a new definition of
“friends in low places” thank you sisters!
Outdoor Mindset members are a tough bunch. Our group includes people with Parkinson’s who are learning to run, people with MS who will crutch for miles driven by their passion for the outdoors, people who are adjusting their love of skiing or biking by learning to use equipment that allows them to keep moving, and more. We are a group that does our best to always keep going, and encourages others to do the same.
I can see that determination in Julie’s mom. In this next entry, as Robin rounds the kitchen island with a hero’s determination, she keeps going as best she can, in the best way she knows how- with friends, family, and laughter surrounding her.
I can also see that determination in Julie. As she runs and writes, she opens up and develops her understanding of how her entire journey with her mother is shaping her into who she is today.
Week of August 27:
|The Baltic Sea|
I spoke to Jan, my Outdoor Mindset running buddy. It's so nice to have support from her about what to expect on my long runs, how my body will feel and what to do about it. Today was a long one so not only did I pull from her training tips but also from her strength as a woman who has also dealt with ALS with her Mom. She's an inspiration and it just makes me want to run longer to do all I can to help.
As I run, I know my Mom is there looking down on me. That may sound weird but I do go into that sort of deep thought as to why I'm doing this while on mile six when my legs aren't loving me. She'd be the loudest screamer for me on the running path. She was my biggest fan when I was a swimmer growing up. I swam all the time; it was my passion as a kid, my sport. I wasn't the best at it but I tried to be. I still have video of my old swimming days and her in the background screaming. Kinda funny. You would think I was about to win the Olympics at how loud she could get those pipes going. But to her it was her kid about to beat another kid in a race, period. It mattered to her.
|Yep - Bubble Butt!|
So this was her exercise. Her biggest obstacle in life. Her hope. If she rounded that table without holding on somehow she thought (and therefore we all thought) perhaps this is just a funny phase in life and will pass. Perhaps it's just an ailment for this month and each day she'll round that table again and again until she's back to normal. Perhaps.
She tried each day. Each day my Dad would be grounded, positive and take it moment by moment and hope. Each day her friends showed up with a new trick up their sleeve and we laughed. Each day they showed up with hope, ready to make her laugh, ready to listen, ready to hug away her tears and fear.
So I continue to run. It makes me realize that I'm not sure I could live sanely without some sort of exercise in my life. It keeps me whole and centered. And wanting to help others fighting a neurological disease, get outside and benefit from that feeling. And I'm feeling good. I think it's due to my overpriced fancy new running shoes. But they are cool. Stay tuned.....
Thanks for reading.